Doctors would like to have more pictures, so Josie will have more tests (sorry I am blanking on the name of the tests they are going to be doing) they initially scheduled the tests for the 3rd, but we just got a call this morning that the tests are going to be on the 10th now...The test requires sedation for Josie (via IV) and fasting for Josie...BOO! But, both Andrew and I say that it is better that the surgeon goes in with the most information He can..so we understand the reason for the pictures.
So we wait for the 10th...
The warmer weather has helped us, we have been able to get out for some walks, and to see some sunshine! A little of Vitamin D, can go a long way...
Thursday, March 28, 2013
Friday, March 22, 2013
Josie is ROBUST!
" Your daughter is absolutely darling...and clearly very robust!"
I had to google the definition of robust, when we got home from our appt. yesterday...but I think it is good that Dr. Haw sees our little Miss Josie as robust :)!
Definition of ro·bust : (of a person, animal, or plant) Strong and healthy; vigorous.
So the appt. with Dr. Haw went pretty well.
Points from the appt.
1. Dr. Haw was not satisfied with the pics, so we need to do some more pics of Little Miss Josie's heart...The Nurse Practitioners that we are working with was going to be off today, so she will call us on Monday to schedule that appt. Since, Josie is doing so well that there is no current rush on surgery, it is just easier to do now, since she will not remember it when she is older, and hopefully her heart will go back to normal size....
2. Dr. Haw has only seen the location of Josie's heart defect, one other time, but He did share that how you fix it, is the same as the other locations...He said that if we went to U of M, he would be quite certian that the Doctor has probably seen it only 1 or maybe 2 times as well...Our Baby girl is that unique and special :)
3. Dr. Haw has done over 7,000 heart surgeries! He eased us with confidence that because Josie is so healthy and robust, that he believes that she will do great!!!!! I have never been so proud of my daughters chubby little legs :)
4. It was incrediably hard to hear the facts about the surgery, the fact that they will have to stop Josie's heart from beating on her own for about an 1 hour, I instantly started shedding tears, How I wish that I could put myself in Josie's shoes....
So the next steps from here....If all goes as planned....
1. More pics ( hopefully we can get these done in the next 2 weeks)
2. We schedulue surgery
3. We have a pre-op visit with the social worker, tour the PICU, and get aquainted with DeVos facitlities.
4. Surgery...
5. Hospital stay of hopefully 5-7 days
6. Josie is on strict recovery for 2 weeks..
7. Josie is on modified recovery for 4 weeks...
and then...hopefully after all those steps, Josie will be on her way to enjoying her first summer, with lots of time in the pool and at the lake....
and so we continue...one day at a time....
I had to google the definition of robust, when we got home from our appt. yesterday...but I think it is good that Dr. Haw sees our little Miss Josie as robust :)!
Definition of ro·bust : (of a person, animal, or plant) Strong and healthy; vigorous.
So the appt. with Dr. Haw went pretty well.
Points from the appt.
1. Dr. Haw was not satisfied with the pics, so we need to do some more pics of Little Miss Josie's heart...The Nurse Practitioners that we are working with was going to be off today, so she will call us on Monday to schedule that appt. Since, Josie is doing so well that there is no current rush on surgery, it is just easier to do now, since she will not remember it when she is older, and hopefully her heart will go back to normal size....
2. Dr. Haw has only seen the location of Josie's heart defect, one other time, but He did share that how you fix it, is the same as the other locations...He said that if we went to U of M, he would be quite certian that the Doctor has probably seen it only 1 or maybe 2 times as well...Our Baby girl is that unique and special :)
3. Dr. Haw has done over 7,000 heart surgeries! He eased us with confidence that because Josie is so healthy and robust, that he believes that she will do great!!!!! I have never been so proud of my daughters chubby little legs :)
4. It was incrediably hard to hear the facts about the surgery, the fact that they will have to stop Josie's heart from beating on her own for about an 1 hour, I instantly started shedding tears, How I wish that I could put myself in Josie's shoes....
So the next steps from here....If all goes as planned....
1. More pics ( hopefully we can get these done in the next 2 weeks)
2. We schedulue surgery
3. We have a pre-op visit with the social worker, tour the PICU, and get aquainted with DeVos facitlities.
4. Surgery...
5. Hospital stay of hopefully 5-7 days
6. Josie is on strict recovery for 2 weeks..
7. Josie is on modified recovery for 4 weeks...
and then...hopefully after all those steps, Josie will be on her way to enjoying her first summer, with lots of time in the pool and at the lake....
and so we continue...one day at a time....
Tuesday, March 19, 2013
Thursday is getting closer...
and as Thursday approaches, my anxiety increases....
please continue to pray that we know if this is the surgeon, also please pray that we hear the confidence in his voice, should he be "the one"...
and just pray for us...pray for peace.....
please continue to pray that we know if this is the surgeon, also please pray that we hear the confidence in his voice, should he be "the one"...
and just pray for us...pray for peace.....
Thursday, March 14, 2013
Moving forward...
I received a call this morning from Dr. Haw secertary, Josie was talked about yesterday at the case consultation (an answered prayer) and we have our pre-op consultation schedulued for next week Thursday (the 21st) with the Surgeon.
This means we are moving forward, which is good news, but also make the fact the Jose is having open heart surgery a bit more real.
Other good news from today, is that I was able to talk to the insurance company and as of March 1, U of M is considered "in network" which means that we still have the option of going to U of M, if needed. Our first choice would be to be at DeVos, but it is nice to know that we are not limited to DeVos because of insurance.
Please pray for the following items, as we prepare for next week...
1. Pray that it is clear to us, where the best place for Jose to have surgery is..
2. Pray for our emotions and hearts to be calm...I know for myself the thought of surgery passes through my mind about every 5 minutes. (and sometimes I do not think that my mind every has a break from thinking about the surgery...
3. That we can balance the difficulties of waiting for surgery, but yet continuing to try to bring meaning to each day.
I will write more later, but there is a little one that would rather be hanging out with her mama than napping.....Oh Jose, I love you so much ( even though you are more stubborn than your daddy and mama put together : ) --and that is stubborn!)
This means we are moving forward, which is good news, but also make the fact the Jose is having open heart surgery a bit more real.
Other good news from today, is that I was able to talk to the insurance company and as of March 1, U of M is considered "in network" which means that we still have the option of going to U of M, if needed. Our first choice would be to be at DeVos, but it is nice to know that we are not limited to DeVos because of insurance.
Please pray for the following items, as we prepare for next week...
1. Pray that it is clear to us, where the best place for Jose to have surgery is..
2. Pray for our emotions and hearts to be calm...I know for myself the thought of surgery passes through my mind about every 5 minutes. (and sometimes I do not think that my mind every has a break from thinking about the surgery...
3. That we can balance the difficulties of waiting for surgery, but yet continuing to try to bring meaning to each day.
I will write more later, but there is a little one that would rather be hanging out with her mama than napping.....Oh Jose, I love you so much ( even though you are more stubborn than your daddy and mama put together : ) --and that is stubborn!)
Monday, March 11, 2013
She did great!!!
Josie Mae did great! I will write more later, but the cardiologist believes they have all the pics they need. Next prayer request is that Josie is put on the list for case consultations this Wednesday, so we can move this process along....Thank you all for the prayers....from Seattle to D C ...to AZ and CO, and many other places...we feel them!
Still sleeping...
Yeah! J is still sleeping, we are at the hospital and waiting for them to take us back, she is doing great! Answered prayer already!
Friday, March 8, 2013
Refusing to worry (Or at least trying to)...
It seems as though the whole month of March , thus far, in the book, Jesus Calling has been written just for me!
March 4, challenged me...
"Refuse to worry! In this world there will always be something enticing you to worry. That is the nature of a fallen, fractured planet: Things are not as they should be. So the temptation to be anxious is constantly with you, trying to worm its way into your mind. The best defense is a continual communication with Me, richly seasoned with thanksgiving. Awareness of My Presence fills your mind with Light and Peace, leaving no room for fear. This awareness lifts you up above your circumstances, enabling you to see problems form My perspective. Live close to ME! together we can keep the wolves of worry at bay. "
So that is where I have been this week...
We do not know anything more as of right now...
Just please continue to pray for:
*Josie's test on Monday
*That the tests go smoothly despite the fact that J's sleep and eating habits will be challenged.
*That the photos that we receive on Monday are adequate for a "Blueprint" for the surgeon for surgery. And that we do not need to have Josie endure additional tests..
We are grateful for the prayers and love....Our Pediatrician called to check in with us this week....She shared that she has had many kiddos go through Open Heart surgery, and they do great! She assured us that she would be thinking about us, and cheering Josie on as well...It is great to feel like we have another player on our team!
I will update soon after Monday to share how things went for Little Miss Josie Mae...
But, for the bottom of our hearts, thank you for the prayers, and love!
March 4, challenged me...
"Refuse to worry! In this world there will always be something enticing you to worry. That is the nature of a fallen, fractured planet: Things are not as they should be. So the temptation to be anxious is constantly with you, trying to worm its way into your mind. The best defense is a continual communication with Me, richly seasoned with thanksgiving. Awareness of My Presence fills your mind with Light and Peace, leaving no room for fear. This awareness lifts you up above your circumstances, enabling you to see problems form My perspective. Live close to ME! together we can keep the wolves of worry at bay. "
So that is where I have been this week...
We do not know anything more as of right now...
Just please continue to pray for:
*Josie's test on Monday
*That the tests go smoothly despite the fact that J's sleep and eating habits will be challenged.
*That the photos that we receive on Monday are adequate for a "Blueprint" for the surgeon for surgery. And that we do not need to have Josie endure additional tests..
We are grateful for the prayers and love....Our Pediatrician called to check in with us this week....She shared that she has had many kiddos go through Open Heart surgery, and they do great! She assured us that she would be thinking about us, and cheering Josie on as well...It is great to feel like we have another player on our team!
I will update soon after Monday to share how things went for Little Miss Josie Mae...
But, for the bottom of our hearts, thank you for the prayers, and love!
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