Friday, March 22, 2013

Josie is ROBUST!

" Your daughter is absolutely darling...and clearly very robust!"

I had to google the definition of robust, when we got home from our appt. yesterday...but I think it is good that Dr. Haw sees our little Miss Josie as robust :)!

Definition of  ro·bust : (of a person, animal, or plant) Strong and healthy; vigorous.

So the appt. with Dr. Haw went pretty well.
Points from the appt.
1. Dr. Haw was not satisfied with the pics, so we need to do some more pics of Little Miss Josie's heart...The Nurse Practitioners that we are working with was going to be off today, so she will call us on Monday to schedule that appt.  Since, Josie is doing so well that there is no current rush on surgery, it is just easier to do now, since she will not remember it when she is older, and hopefully her heart will go back to normal size....
2. Dr. Haw has only seen the location of Josie's heart defect, one other time, but He did share that how you fix it, is the same as the other locations...He said that if we went to U of M, he would be quite certian that the  Doctor has probably seen it only  1 or maybe 2 times as well...Our Baby girl is that unique and special :)
3. Dr. Haw has done over 7,000 heart surgeries! He eased us with confidence that because Josie is so healthy and robust, that he believes that she will do great!!!!! I have never been so proud of my daughters chubby little legs :)
4. It was incrediably hard to hear the facts about the surgery, the fact that they will have to stop Josie's heart from beating on her own for about an 1 hour, I instantly started shedding tears, How I wish that I could put myself in Josie's shoes....


So the next steps from here....If all goes as planned....
1. More pics ( hopefully we can get these done in the next 2 weeks)
2. We schedulue surgery
3. We have a pre-op visit with the social worker, tour the PICU, and get aquainted with DeVos facitlities.
4. Surgery...
5. Hospital stay of hopefully 5-7 days
6. Josie is on strict recovery for 2 weeks..
7. Josie is on modified recovery for 4 weeks...
and then...hopefully after all those steps, Josie will be on her way to enjoying her first summer, with lots of time in the pool and at the lake....

and so we continue...one day at a time....





No comments:

Post a Comment